One Friday afternoon, I was sitting on the couch with my 18-month-old Lola singing songs. I noticed a strange white cloud in her right eye. I had never noticed this before. It was quite dense and took up most of her pupil…. So as any worried mum does I googled it. BAD IDEA! Then in a panic I tried to book an appointment at the doctor to put my mind at ease, but being a Friday afternoon before a long weekend, they were all booked out. So, my next thought was the optometrist. We could go straight in.
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The sonographer zooms in, the sonographer zooms out. Again.
The ultrasound session feels like it has stalled - we’ve been looking at bub’s eyes for a while now. This is normal right? I've sat through a few ultrasounds... what happens next is the bit that keeps an expectant parent awake at night. The sonographer has gone quiet. After a rocky pregnancy, Harriet was born four weeks early weighing a light 2 kg. We thought all our worries were over now she was in the world. On a paed check on day three, they noticed a white reflex in her right eye and on investigation they confirmed that she was born with a cataract. We were told that it could be caused by a plethora of possible reason and tests were done to try and work out why. The all clear was given for any syndrome and metabolic issues and we were referred to the children's hospital with a congenital cataract.
Lucas was born in January 201x. During the hospital discharge screening on day 3 the registrar could not see a red light reflex in his left eye. After additional reviews by the consultant, Lucas was diagnosed with a likely left congenial cataract. On day 5 we attended the children’s hospital for an urgent consult, and surgery was scheduled for February (7 weeks of age) for removal of the significant left congenital cataract.
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