Tips and tricks

Parents' best advice on the daily practicalities of supporting kids with cataracts
These ideas are based on what families say has worked for them.  Send us your tips and tricks.
​Attending appointments
  • Be prepared for a long wait (especially in the public hospital system).  Depending on the child's age, bring extra bottles and nappies, snacks and toys. Children's hospitals will have a place to breastfeed or heat a bottle, and likely also have indoor and outdoor play spaces, food outlets and shops, and support services such as social workers.  
  • Check out this video showing a visit for an eye exam at Melbourne's Royal Children's Hospital - a great resource for kids and their families. 
  • Is your child struggling with their check ups?  Try asking for a Child Life Therapist to attend as well - most major hospitals have these specialists (though availability might be limited).
  • If you have to travel a long distance to attend appointments, see if you are eligible for state-based travel subsidy schemes - see Resources and Support on this site 
  • Be prepared to see more than one healthcare professional. Your child may be seen by an orthoptist first for a vision assessment, then have drops put in to dilate their pupils, before seeing the ophthalmologist. 
  • Bring a contact lens case, lens remover (plunger) and solution to your ophthalmology appointment. Your ophthalmologist will want to check the intraocular pressure of your child's eyes at these appointments.
  • Ask questions!  The Top Tips for Safe Healthcare website has lots of good information about how to get the most out of your child's health care. 
Celebrating diversity
  Contact lenses
  • Using a plunger for removing hard ('RGP') lenses can be very helpful in babies and young children.  (Get these where you get the contact lenses, or online).
  • For soft lenses, remove them carefully using the fingers - there are different techniques so ask for your health professional to show you. 
  • Singing, nursery rhymes or other things that distract your baby might help while inserting or removing contacts. Counting down might help older children. 
  • Here's one video about contact lenses from the UK. 
  • To find lost lenses, use a torch (they may glint in the light) or vacuum the area with a stocking over the nozzle.  
  • Develop a consistent routine and stick to it - for example, if you are inserting and removing lenses daily, always insert them early in the day and remove before bed.  Make it just another thing that must be done, like brushing teeth. 
  • Look for YouTube videos on inserting and removing lenses in babies and young children, including on the Cataract Kids YouTube channel. 
  • For babies, insertion and removal of lenses can be done whilst asleep or feeding.   Do it at a time when they are not over-tired and rubbing their eyes. 
  • Try wrapping your baby in a towel or soft cloth, to keep their hands out of the way.  
  • Toddlers can be gently restrained as in this photo.
Patching
  • Here's a list of patch brands and online stockists in Australia.
  • Again, develop a consistent routine. 
  • Not every child needs to patch! For those who do, the recommended time varies greatly depending on the individual child, and is likely to change over time.  Follow the advice of your health professional. 
  • To get a child to leave a patch on, try distraction with TV, light up toys, food or an outing. ​ Wear a patch yourself or pop one on your child's favourite teddy!
  • Rewards such as a sticker chart may be useful for slightly older children.  Use the worn patches as stickers to make a colourful picture; at the end of the week, reward good patching with a fun outing or treat. 
  • Decorate patches with stickers or drawings. 
  • Picture books by Juliette Vignola designed for young children -  'Samantha Wears a Contact Lens and Patch' and 'Jack Wears Glasses and a Patch' - are a great resource. 
  • Print the Cataract Kids Australia patch-wearing superhero for your child to colour in.   
  • Arm immobilisers or splints are one solution; floaties work well as an inexpensive version. 
  • Keep your baby's nails short and consider gloves so they cannot lift up the edge of the patch to pull it off. 
  • To help with skin irritation caused by patching, try applying the patch to an item of your clothing first to remove some of the stickiness.  The glue varies on the different patch brands, so if one type of patch irritates your child's skin, definitely try another brand.  
  • Try trimming some of the sticky edge off so that there is less to irritate. 
  • If removing the patch from your child's face hurts them, try wetting the patch with water or coconut oil several minutes before removing it. Paw paw cream or similar can be applied afterwards to soothe irritated skin. 
  • Apply patches to clean, dry skin.  In hot or humid climates try patching early in the day. 
  • There's more information in this Renwick Centre podcast
Cataract Kids Australia Ltd 2018